The SingelSwim Utrecht is a benefit swim and is organized by the FSHD Foundation in collaboration with Spieren voor Spieren. The team consists of:
Annette Menheere, chairman
Rob Staartjes, treasurer
Michiel van der Graaf,
Sophie van der Graaf, Secretary
Marjan van Grieken, Fundraising
Annette Menheere, chairman: “It is great to make an effort together for a rotten disease for which there is nothing to date! I am proud to be able to inspire my children to commit themselves to people who sometimes have unimaginably tough lives due to bad luck. The more we collect together, the faster a solution comes closer. That is why once a year I really challenge everyone to swim against FSHD # do good makes you feel good! "